
While reading 5 Things I Wish I Would Have Known When I Was First Diagnosed With Ankylosing Spondylitis keep in mind that this is my personal experience with Ankylosing Spondylitis. We are each unique and so is our experience with this disease. However, I think if I knew these five things 15 years ago my journey forward may have been a bit simpler. Regardless of how hard it has been to get to exactly where I am now I would not change a thing. The struggles I have endured and continue to encounter from time to time have helped me to grow and become stronger. I am forever thankful for all of them! YOU DO NOT HAVE TO BE FEARFUL You do not have to be fearful of your future. You can still have a family, a career, achieve all your hopes and dreams. You will be able to do all the things that you loved pre-diagnosis. It’s ok to be scared. Being scared is a normal response to being diagnosed with a chronic illness but be careful to not let fear completely take over. Don’t let your medical team or what you read on the internet scare you. Your doctor means well and is only sharing his/her perspective based on the standard of care. He/she does not personally know what is possible for you when it comes to healing. You know yourself better than anyone else. You know that little voice you hear in your head, or the gut feeling that you have about something. Listen to it. It’s your intuition and is speaking to you for a reason. Don’t ignore it. Listen to it every step of the way. YOU ARE NOT A STATISTIC You are not a statistic or a textbook case. You are unique and your experience with Ankylosing Spondylitis is unique as well. Try to trust and let the fear go. It’s hard but it’s so important for your health. Being in a cycle of constant fear will create a chronic state of fight or flight which will only create more stress and hinder your health even more. I wish I would have understood that simply acknowledging my fear would lead to faster acceptance of what was ahead. Instead, I tried to ignore it which only made it fester more. YOU HAVE MORE CONTROL THAN YOU MAY REALIZE You have more control than you may realize. Focus on what you can…
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